WHY BECOME A DONOR?
Blood cancer and Thalassemia are words that have the force to unsettle even the strongest and bravest. It is not just the diagnosis of the disease, but also the social perception and lack of awareness about its treatment which makes it difficult for the patient to overcome the disease. A Unrelate Blood Stem Cell Transplant is most often the only cure for such disorders.
A patient only has a 25% chance of ﬁnding a donor from within the family. Majority of the patients have to depend on Unrelated Blood Stem Cell Donors. The probability of ﬁnding an unrelated matched donor is 1 in 10,000 to 1 in over a Million. You could say that 1 in a Million match is for someone who is gripping on to their life at the edge with hope.
Take the ﬁrst step. Register yourself as a potential Bone Marrow (or) Peripheral Blood Stem Cell Donor.
PATIENTS WAITING FOR A MATCH
Arya, 11 was diagnosed with Aplastic Anaemia in July 2020. Aplastic Anaemia is a life threatening blood disorder in which the body stops producing new blood cells that are needed to carry oxygen, prevent infection and to stop bleeding. Arya is in desperate need of a...
My wife Richi, who is a fellow Chartered Accountant and has spent her life working for social causes, has been diagnosed with a rare disease called Acute Myeloid Leukemia. This is one of the most aggressive forms of blood cancer. While she remains happy and has shown...
Saharsh Ponnapalli, is a 14 month old baby who is battling Bone marrow failure (Aplastic Anemia) and he should not have to fight it alone. There are no matched donors in his immediate family. This little one needs an immediate blood stem cell donor who could be his...
Three year old Shahera has a very rare Primary Immunodeficiency Disorder, that means she can’t produce enough white blood cells and fight off infections. All her family members have been tested but none of them are a stem cell match. Her family is requesting people...
Hi, I’m Veer, I’m a 3 year old kid who needs a Bone Marrow Donor to permanently cure my fatal disorder. Will you please help me find one? People know me as a cheeky, happy go lucky boy, with a really energetic personality. I bring a lot of joy to all those...
Arjit is a vivacious, intelligent 26-year-old engineer and an avid sports enthusiast with a warm personality. However, life took a serious blow when he was diagnosed with Small Lymphocyte Lymphoma(SLL) / Chronic Lymphocyte Lymphoma (CLL), a rare type of blood cancer....
Niya Fathima is a 5-year-old diagnosed with Thalassemia. She needs a life-saving blood stem transplant to survive.
1. What is Peripheral Blood Stem Cell Donor’s registry?
Blood Stem Cell Donors Registry is where one can enroll as a donor. Once a person signs-up as a donor, her/his details are recorded and stored in the database along with HLA typing report. This database is cross-verified periodically by the registry donor follow up team. If Registry receives the search request, then HLA typing is compared with the donor and donation process is taken forward only when 10/10 HLA typing is matched.
2. How to become a potential blood stem cell donor?
You are open to register in any Blood Stem Cell Donors Registry as per your wish, your age has to be between 18 to 50 years. A small contribution of Rs.1800 is collected during the registering with us, this contribution is for HLA tying cost. You will be intimated when you become an only live-saving match, remember you are the only hope for the patient.
3. Who can donate blood stem cell or bone marrow?
Any person between the age of 18-50 years and is not suffering from HIV, Cancer or Bleeding disorder can become a Blood Stem Cell Donor.
4. Are relatives more likely to become a bone marrow match?
There is only a 25% chance that any close relative can match up to the recipient’s requirements.
5. What are the risks behind the bone marrow donation?
Bone marrow donation is done under anesthesia, and hence there’s no pain. However, discomfort or side effects may vary depending on each person. Some people have reported back or hip pain. There are no major side effects reported till date during or after Bone Marrow Donation.