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Thalassemia 2025-01
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This World Thalassemia Day Register your Support for a Thalassemia Free India
Nine-year-old Vihaan suffers from Thalassemia Major a rare blood disorder. Vihaan was diagnosed as Thalassemia Major when he was five months old and from that time he has been on blood transfusion once in two months. Vihaan is unable to attend school regularly because of his health condition. There are thousands of patients like Vihaan who are affected with Thalassemia. As per ICMR (Indian Council of Medical Research) 10,000 children are diagnosed with thalassemia in India every year .

So What is Thalassemia?
Thalassemia is a genetic blood disorder that affects the production of hemoglobin, a protein in red blood stem cells that carries oxygen. Thalassemia results in reduced production of normal hemoglobin, leading to anemia (low red blood cell count), fatigue, weakness, bone deformities, jaundice, organ damage and other health complications. Thalassemia patients have to be on life-long regular blood transfusions and if they miss the doing it can be fatal.

What is the Cure for Thalassemia?
The only long-term curative option for thalassemia is bone marrow transplant where the faulty blood stem cells are replaced with healthy blood stem cells from a matching donor.

How Can You Help a Thalassemia Patient?

1.By Registring as Blood Stem Cell Donor

You can help patients like Vihaan who suffer from thalassemia by donating your blood stem cell and be the cure for them. Creating a Thalassemia Free India requires collective efforts from individuals, communities, and organizations.

2. By Sponsoring donors/ By donating fund to recruit the donors

Your support through blood stem cell donation and money donations for recruiting donors can help to make a significant difference in the lives of Thalassemia patients and their families.

Join DATRI in its life saving mission and gift a life!

 

Register now with DATRI India’s largest Blood Stem Cell Donors Registry to be that one in a million potential blood stem cell donors and create a Thalassemia Free India.

Thalassemia Blogs

Lets hear from our proud donors

"Being able to save a life is something that most people never have the chance to experience... Knowing that I could make such a difference in someone's life is a feeling that can't be described in words It was an honor to have the opportunity to donate with datri The entire process was smooth and easy to understand. Thank you for the opportunity to save a life made it possible for me to do just that."

Priya Thorat Blood Stem Cell Donor Finance Professional

Priya Thorat

Blood Stem Cell Donor | Finance Professional | Pune

"As a medical student, I was always aware of the significance of blood stem cell donation, and DATRI has provided an excellent platform for me to become a potential donor myself. Thanks to DATRI, I can now give the wonderful gift of life to someone in need."

Madhu Priya

Madhu Priya

Potential Blood Stem Cell Donor | Medical Student | Karnataka

"First of all, I would like to Thank DATRI for creating this opportunity for me. Literally, I don't have any idea about what was going on, but the DATRI team is very knowledgeable and very serious about what they doing, so they took me through the entire process very seamlessly and every day, I used to have conversations with the DATRI team. More & more I got enough confidence with me. That made me donate blood stem cells to the needy and I am very blessed, that I could make difference in someone's life."

Naveen

Naveen

Blood Stem Cell Donor | Banking Operations – Risk and Control | Bengaluru

"Knowing that the chance of finding a matching donor is one in a million, I was surprised initially when I got matched for a patient. My family, friends, and DATRI were extremely supportive of my decision and stood by me throughout my journey. It was an incredible feeling knowing that I was going to give someone a second chance at life!"

Akshaya donor

Akshaya

Blood Stem Cell Donor | M-Tech Student | Kerala

"The joy of giving a life to someone is indescribable. I had always felt that I wanted to do something worthwhile in my life and this experience was a dream come true."

Sahaj donor

Sahaj Chawla

Potential Blood Stem Cell Donor | Student | Bengaluru

On the occasion of International Thalassemia Day, children showcased their creativity to raise awareness about thalassemia. Thirty children from the House of Wisdom Foundation in Mumbai participated, showcased their drawing skill to promote understanding of the condition. DATRI applauds each child for their using remarkable artwork in support of this cause.

DATRI Launches “Thalassemia Free India “Campaign,partnership with Saptha Foundation at the Prahallada Kalyana mandapam , Srikakulam in Andhra Pradesh on September 5, 2023.

Mukthi Thalassemia Welfare Foundation Images

Thalassemia Drive Images

Thalassemia Free India Campaign Donor Registration

People from all walks of life registered as potential blood stem cell donor in the recruitment drive conducted to mark World Thalassemia Day. Thank You potential lifesavers. Your support Counts!

Doctors Register as Donors to mark World Thalassemia Day

Thank you Doctors for supporting DATRI”s Thalassemia Free India Campaign. With your registration as a blood stem cell you are now a potential donor. Your step will inspire many to register as blood stem cell donors

FREQUENTLY ASKED QUESTIONS

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What is thalassemia?
👉Thalassemia is a genetic blood disorder that affects the production of hemoglobin, the protein in red blood cells that carries oxygen to the body’s tissues.
What are the symptoms of thalassemia?
👉The symptoms of thalassemia can vary depending on the severity of the condition. Mild cases may not cause any symptoms, while severe cases can cause anemia, fatigue, weakness, shortness of breath, jaundice, and other complications.
How is thalassemia diagnosed?
👉Thalassemia is usually diagnosed through a blood test that measures the amount of hemoglobin in the blood and the size of red blood cells. Genetic testing can also be done to confirm the diagnosis and determine the specific type of thalassemia.
Is there a cure for thalassemia?
👉There is currently no cure for thalassemia, but treatment can help manage the symptoms and improve quality of life. Treatment options include blood transfusions, bone marrow transplant, and medication.
What is a bone marrow transplant?
👉A bone marrow transplant is a medical procedure where healthy stem cells from a donor’s bone marrow are transplanted into a patient’s bone marrow to replace damaged or diseased cells.

You Can Register For Thalassemia Free India Campaign

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