ABOUT DATRI

DATRI is a non- profit organization that was founded in 2009 with a mission to save the lives of those suffering from life threatening blood disorders like Blood Cancer, Thalassemia, Aplastic Anemia etc. DATRI is working towards creating a wide and diverse database of potential blood stem cell donors that can be accessed by any patient, living anywhere in the world, in need of a blood stem cell transplant. DATRI is registered with Government of India as a Section 8 organization and all monetary contributions towards DATRI are subject to 80G exemptions.

HISTORY

Just before his return from the US, Raghu Rajagopal encountered a life-changing experience when one of his friends back in the US wanted him to help in finding a bone marrow donor for his fiancée who was suffering from Blood Cancer. Failing to find a match with the existing registries in the US, Raghu helped him conduct donor recruitment drives focusing on Indians residing in the US. That is when he discovered that India does not have a registry for blood stem cell donors. He saw the dire need for a Blood Stem Cell Donor Registry in the country as there were thousands of patients suffering from blood disorders who could be saved only if there was genetically (HLA) matched willing donors. It was not an easy start as Raghu did not have a medical background or support from the medical fraternity. It took a while for the idea of forming a registry in India to crystallize, mainly because of the costs involved in Human Leukocyte Antigen (HLA) typing. Collaborating with Dr. Nezih Cereb and Dr. Soo Young Yang, founders of Histogenetics, a laboratory that specializes in HLA typing, Raghu cofounded DATRI (a Sanskrit word that means donor) in 2009. It was extremely difficult to break the ice in the initial days. But patience, hard work, and perseverance paid off and in just 9 years DATRI turned into India’s largest blood stem cell donors registry with over 3,62, 000 registered volunteer donor.

VISION & MISSION

Through systematic donor drives, DATRI seeks to build awareness and enroll potential blood stem cell donors. For a successful transplant, the patients’ genetic typing (HLA Typing – redirect to HLA page) needs to closely match with that of the donor. Every patient has a 25% chance of finding a match within the family. However, the rest of the patients do not find a suitable donor within the family. In such cases, there is a need to find an unrelated donor or a cord blood unit. Donor registries work towards creating a diverse database where the search of a life-saving donor meets a match. There are over 80 donor registries & more than 30 Million registered donors across the globe, with a very few Indians being a part of it. This reduces the chances of finding a possible match for a patient of Indian origin. India is in real need of a functional registry with donors belonging to diverse ethnic backgrounds. A patient is more likely to find a possible match within his/her race/ethnicity, (i.e.) with people sharing the same cultural linguistic, biological traits etc.

VISION

We envision a society in which every patient in need of life saving blood stem cells, is provided with an opportunity to find a HLA matched, willing donor.

MISSION

To create a registry of committed, voluntary, Tissue/HLA typed donors, who are well informed and are willing to donate, to a patient.

VALUES

Donor Safety

To ensure that donor safety is not compromised irrespective of the urgency of the patient’s needs.

Excellence

To be driven by the spirit of excellence in attaining and maintaining first class quality in all endeavours.

Integrity

Ensure the highest level of honesty and integrity in all our interactions.

Compassion

To approach all our activities with a deep awareness of the situation of those who are in need of life saving transplants and promote sensitivity to the dignity of each individual.

Commitment

To be fully and passionately committed to our mission of saving lives through enabling of volunteer enrolment for stem cell donation.

Transparency

To create openness and transparency in all our interactions & processes.

Founding Members

Raghu Rajagopal

Co-Founder & CEO

Raghu is passionate about cancer-cure and was geared to address the challenges faced by people of Indian origin who were suffering from fatal blood disorders including Leukemia and Thalassemia. An engineering graduate from BITS, Pilani, Raghu has been very active in the entrepreneurial eco-system in the US and India.

Dr. Soo Young Yang,

Co-Founder & Director

Dr. Yang is the Chairman and the Founder of Histogenetics, a state-of-art laboratory which specialises in HLA Typing. With over 25 years of extensive research and experience in HLA genetics, Dr. Yang has contributed significantly to the field of human immunogenetics.

Dr. Nezih Cereb

Co-Founder & Chairperson

Dr. Cereb is the President and the Co-Founder of Histogenetics. Dr. Cereb is an expert in introducing and implementing the latest technology for HLA typing. He has a background in clinical medicine, particularly in bone marrow transplantation and in Basic and Applied Immunogenetics research.

AFFILIATIONS

DATRI is a registered member with World Marrow Donor Association (WMDA) and follows WMDA guidelines and processes. DATRI is also listed in the Global Search Program, Bone Marrow Donors Worldwide(BMDW).

We are registered with Government of India as a Section 8 organization and all monetary contributions towards DATRI are subject to 80G exemptions.

OUR TEAM

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